Our moral obligations in caring for patients with orphan cancers

Fernandez, Conrad V.
January 2007
CMAJ: Canadian Medical Association Journal;1/30/2007, Vol. 176 Issue 3, p297
Academic Journal
The author argues that Canadian health care policy makers, with public approval, should not ignore the unique obstacles and difficult moral boundaries associated with patients suffering from rare cancers and other rare diseases. Adolescents and young adults are one group defined as an "orphan" population who experience a negative impact on survival and quality of life due to delays in diagnosis, lack of access to specialized care, lack of support groups and inadequate therapeutic options.


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