TITLE

Our moral obligations in caring for patients with orphan cancers

AUTHOR(S)
Fernandez, Conrad V.
PUB. DATE
January 2007
SOURCE
CMAJ: Canadian Medical Association Journal;1/30/2007, Vol. 176 Issue 3, p297
SOURCE TYPE
Academic Journal
DOC. TYPE
Editorial
ABSTRACT
The author argues that Canadian health care policy makers, with public approval, should not ignore the unique obstacles and difficult moral boundaries associated with patients suffering from rare cancers and other rare diseases. Adolescents and young adults are one group defined as an "orphan" population who experience a negative impact on survival and quality of life due to delays in diagnosis, lack of access to specialized care, lack of support groups and inadequate therapeutic options.
ACCESSION #
23761127

 

Related Articles

  • e-ENERCA: telemedicine platform for rare anaemias. Gulbis, Béatrice; Mañú Pereira, María del Mar; Armaza Armaza, Emilio J.; Nicolás, Pilar // Thalassemia Reports;2014, Vol. 4 Issue 3, p91 

    The creation of a telemedicine, tele-expertise platform opens a new challenge within the European Network for Rare and Congenital Anaemias (ENERCA; www.enerca.org). This is a cornerstone in the field of rare anaemias, in which national expertise is usually scarce and a significant number of...

  • Looking to Hume for justice: on the utility of Hume's view of justice for American health care reform. Churchill, Larry R.; Churchill, L R // Journal of Medicine & Philosophy;Aug99, Vol. 24 Issue 4, p352 

    This essay argues that Hume's theory of justice can be useful in framing a more persuasive case for universal access in health care. Theories of justice derived from a Rawlsian social contract tradition tend to make the conditions for deliberation on justice remote from the lives of most...

  • Hyder responds. Hyder, Adnan A. // American Journal of Public Health;Jan1998, Vol. 88 Issue 1, p131 

    The author comments on an article that raises ethical concerns regarding plans for global polio eradication. Among the issues raised in the article that the author believes need further clarification are: savings from polio eradication are located primarily in the developed countries since...

  • The Right to Health. J. F. // Health & Human Rights: An International Journal;2012, Vol. 14 Issue 1, p2 

    The article reviews the book "The Right to Health," by Gunilla Backman.

  • Wait for it. Bates, Jane // Nursing Standard;8/26/2015, Vol. 29 Issue 52, p26 

    'Are they giving you preferential treatment? Do you get pushed to the top of the queue?'

  • The unethical focus on access: A study of medical ethics and the waiting-time guarantee. Karlberg, H. I.; Brinkmo, B.-M. // Scandinavian Journal of Public Health;Mar2009, Vol. 37 Issue 2, p117 

    Aim: All civilized societies favour ethical principles of equity. In healthcare, these principles generally focus on needs for medical care. Methods for establishing priorities among such needs are instrumental in this process. In this study, we analysed whether rules on access to healthcare,...

  • Assisted reproductive technologies and equity of access issues. Peterson, M. M. // Journal of Medical Ethics;Jun2005, Vol. 31 Issue 5, p280 

    In Australia and other countries, certain groups of women have traditionally been denied access to assisted reproductive technologies (ARTs). These typically are single heterosexual women, lesbians, poor women, and those whose ability to rear children is questioned, particularly women with...

  • National HIV treatment guidelines in Tanzania and Ethiopia: are they legitimate rationing tools? Johansson, K. A.; Jerene, D.; Norheim, O. F. // Journal of Medical Ethics;Jun2008, Vol. 34 Issue 6, p478 

    Objective: To provide an ethical analysis of whether the Ethiopian and Tanzanian national HIV/AIDS treatment guidelines can be considered legitimate and fair rationing tools. Method: Qualitative study and ethical analysis involving guideline documents and interviews with nine key members...

  • ETICA GRIJII, VULNERABILITATE ÅžI ACCES LA ÃŽNGRIJIRI. SĂPLĂCAN, CĂLIN // Studia Universitatis Babes-Bolyai, Bioethica (2011);Jun2013, Vol. 58 Issue 1, p11 

    Based on the ethical evaluation of a case study, the article refers to the ethics of care in order to articulate two perspectives of health care: the first one aims at medical care remedies, so as the removal of the so called life obstacles, while the second one concern the daily care needed to...

Share

Read the Article

Courtesy of VIRGINIA BEACH PUBLIC LIBRARY AND SYSTEM

Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics