The palliative care needs of people with intellectual disabilities: a literature review

Tuffrey-Wijne, Irene
January 2003
Palliative Medicine;Jan2003, Vol. 17 Issue 1, p55
Academic Journal
People with intellectual disabilities are among the most disadvantaged groups in society. A literature review was conducted aiming to answer the following question: What are the palliative care needs of people with intellectual disabilities? The literature review covers case histories, morbidity and mortality patterns for people with intellectual disabilities, their healthcare needs and primary care provision, the way they may present symptoms, their conceptualization of illness and death and issues around education and training. While the literature review reveals a lack of empirical data around the palliative care needs of people with intellectual disabilities, a number of potential problem areas are highlighted. These include late presentation of illness, difficulties in assessing symptoms, difficulties in understanding the illness and its implications and ethical issues around decision making and consent to treatment. It is suggested that future studies will need to include the views and experiences of people with intellectual disabilities themselves. Areas for possible future development include symptom assessment, evaluation of current practice and access to services and the development of information and training materials.


Related Articles

  • Legal proceedings by mental patients.  // British Medical Journal (Clinical Research Edition);3/22/1986, Vol. 292 Issue 6523, p820 

    Focuses on the legal proceedings by mental patients on medical care in Great Britain. Discussions on the Mental health Act of 1983; Evaluations on the legal actions of doctors; Evaluations on the complaints of Miss Mary Agnes Winch.

  • Collaborative Family Healthcare in an Uninsured Primary-Care Population: Stages of Integration. Cameron, Janet K.; Mauksch, Larry B. // Families, Systems & Health: The Journal of Collaborative Family ;Winter2002, Vol. 20 Issue 4, p343 

    Medical providers serving a poor, uninsured primary-care population were overwhelmed by a large number of patients with mental disorders. We found little information documenting the details of system change needed to address population needs.

  • Mental health first aid training of the public in a rural area: a cluster randomized trial [ISRCTN53887541]. Jorm, Anthony F.; Kitchener, Betty A.; O'Kearney, Richard; Dear, Keith B. G. // BMC Psychiatry;2004, Vol. 4, p33 

    Background: A Mental Health First Aid course has been developed which trains members of the public in how to give initial help in mental health crisis situations and to support people developing mental health problems. This course has previously been evaluated in a randomized controlled trial in...

  • Pioneering aspects of psychiatry. el-Guebaly, Nady; el-Guebaly, N // Canadian Journal of Psychiatry;Nov1999, Vol. 44 Issue 9, p868 

    Focuses on the pioneering aspects of the psychiatric practice in Canada. Efforts in designing a strategy for the delivery of services to the mentally ill; Challenges facing the psychiatric practice; Role of Health Canada in fostering service delivery standards.

  • Mental health care in Cambodia. Somasundaram, Daya J.; van de Put, Willem A.C.M. // Bulletin of the World Health Organization;1999, Vol. 77 Issue 3, p275 

    Looks into the integration of mental health services into a broad framework of health programs in Cambodia. Efforts of the Transcultural Psychosocial Organization in establishing community-based services for the mentally ill; Emphasis on non-pharmacologic interventions; Enhancement of the...

  • Announcements.  // Journal of Palliative Medicine;Apr2002, Vol. 5 Issue 2, p337 

    Presents several announcements related to palliative medicine in the U.S.

  • Meetings and Events.  // Journal of Palliative Medicine;Apr2002, Vol. 5 Issue 2, p335 

    Presents a calendar of events related to palliative medicine in 2002.

  • Announcements.  // Journal of Palliative Medicine;Apr2003, Vol. 6 Issue 2, p329 

    Offers news briefs on palliative medicine in the U.S. as of April 2003. Description of the Palliative Medicine Fellowship program of the Medical College of Wisconsin; Details of the American Board of Hospice and Palliative Medicine physician certification examination for 2003; Introduction of...

  • Putting last wishes first. Hudson, Terese // H&HN: Hospitals & Health Networks;12/05/96, Vol. 70 Issue 23, p76 

    Presents information on the use of a palliative care team at the Hospice of Northern Virginia in Falls Church, as a support for patients, their families, and doctors from hospice executive Betsy Murphy. Team as including a nurse, a chaplain and social worker; Demand for the service; Mission of...

  • Gain on pain. Beresford, Larry // H&HN: Hospitals & Health Networks;08/05-08/20/98, Vol. 72 Issue 15/16, p72 

    Presents information on palliative care in the United States. Efforts of two universities to develop pain control standards in cancer and other diseases and regulatory obstacles to pain management; Information on funding for the projects; Reference to summit held in 1994 on management by...


Read the Article


Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics