TITLE

DNA databanks, public opinion and the law

AUTHOR(S)
Caulfield, Timothy; Outerbridge, Tim
PUB. DATE
December 2002
SOURCE
Clinical & Investigative Medicine;Dec2002, Vol. 25 Issue 6, p252
SOURCE TYPE
Academic Journal
DOC. TYPE
Article
ABSTRACT
Examines public opinion on the suggested policy strategies to deal with the issue of consent for DNA databanks in Canada. Details of the Canadian law and policy on the consent for the use of health information and tissue for research purposes; Proposal for the waiver of the consent process; Recommendation for the use of a blanket consent.
ACCESSION #
8794162

 

Related Articles

  • Use of personal medical records for research purposes. Wald, Nicholas; Law, Malcolm; Meade, Tom; Miller, George; Alberman, Eva; Dickinson, John // BMJ: British Medical Journal (International Edition);11/26/94, Vol. 309 Issue 6966, p1422 

    Evaluates the use of personal medical records for research purposes in Great Britain. Need for explicit consent from patients; Submission of medical records to the ethics committee; Reference to the draft bill governing the use and disclosure of personal health information.

  • Responsibility in the use of personal medical information for research: principles and guide to practice.  // British Medical Journal (Clinical Research Edition);4/13/1985, Vol. 290 Issue 6475, p1120 

    Evalautes the responsibility associated with use of personal medical information for research. Concerns of the public for the possible misuse of confidential personal and medical information; Efforts of the Medical Research Council to protect confidential information; Provision of principles...

  • Overcoming barriers to recruitment in health research. Hewison, Jenny; Haines, Andy // BMJ: British Medical Journal (International Edition);8/5/2006, Vol. 332 Issue 7562, p300 

    The article discusses the impact of research ethics on recruitment in medical research. Research methodology and confidentiality requirements used in recruitment are described. The authors argue that confidentiality rules limit the access of researchers to potential participants and negatively...

  • Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study. Robling, M. R.; Hood, K.; Houston, H.; Pill, R.; Fay, J.; Evans, H. M. // Journal of Medical Ethics;Feb2004, Vol. 30 Issue 1, p104 

    Objectives: Recent legislative changes within the United Kingdom have stimulated professional debate about access to patient data within research. However, there is currently little awareness of public views about such research. The authors sought to explore attitudes of the public, and their...

  • EHRs need dataset limits built into electronic system.  // Clinical Trials Administrator;Apr2009, Vol. 7 Issue 4, p41 

    The article discusses the need to set dataset limits for electronic systems for health records. Recommended security measures include having someone monitor the database records to see precisely what type of information researchers and others accessed, as well as having a big clinical data...

  • Commentary:Legal issues of data anonymisation in research. Wilson, Petra // BMJ: British Medical Journal (International Edition);5/29/2004, Vol. 328 Issue 7451, p1300 

    Presents comments on a study that demonstrated the value of anonymised individual data in medical research. Legal questions that are raised by the use of anonymised data; Description of the Data Protection Directive; Need for regulators to address the role of anonymisation of data in medical...

  • Honest brokers collaborate to preserve patient privacy.  // IRB Advisor;Jan2009, Vol. 9 Issue 1, p5 

    The article deals with a network of honest broker systems created by the University of Pittsburgh that allows honest brokers at various institutional entities to collaborate to preserve patient privacy. Rajiv Dhir, chief of pathology at Shadyside Hospital, University of Pittsburgh Health Systems...

  • Access to medical records for research purposes: varying perceptions across research ethics boards. Willison, D. J.; Emerson, C.; Szala-Meneok, K. V.; Gibson, E.; Schwartz, L.; Weisbaum, K. M.; Fournier, F.; Brazil, K.; Coughlin, M. D. // Journal of Medical Ethics;Apr2008, Vol. 34 Issue 4, p308 

    Introduction: Variation across research ethics boards (REBs) in conditions placed on access to medical records for research purposes raises concerns around negative impacts on research quality and on human subject protection, including privacy. Aim: To study variation in REB consent requirements...

  • Overzealous data protection hampering medical research.  // PharmacoEconomics & Outcomes News;2/11/2006, Issue 496, p2 

    The article discusses research being done on the regulations governing personal medical data in Great Britain. It references a study by the British Academy of Medical Sciences in its January 17, 2006 issue. According to the report, the risks to public health of hindering medical research are...

Share

Read the Article

Courtesy of THE LIBRARY OF VIRGINIA

Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics