Addressing rare diseases in Puerto Rico

Fernández-Repollet, Emma
September 2012
Caribbean Business;9/13/2012, Vol. 40 Issue 36, Special section p12
The article focuses on the rare diseases in Puerto Rico. It mentions that the Therapeutics for Rare and Neglected Diseases (TRND) program was created by the U.S. National Institutes of Health (NIH) which aims to speed and encourage the development of new drugs for neglected and rare diseases. It cites the Hermansky-Pudlak Syndrome which was characterized by eye problems, albinism, and bleeding disorders.


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