TITLE

Do children with non-malignant life-threatening conditions receive effective palliative care? A pragmatic evaluation of a local service

AUTHOR(S)
Horrocks, S; Somerset, M; Salisbury, C
PUB. DATE
September 2002
SOURCE
Palliative Medicine;Sep2002, Vol. 16 Issue 5, p410
SOURCE TYPE
Academic Journal
DOC. TYPE
Article
ABSTRACT
Introduction: A service established in October 1998 aimed to provide nursing and psychological support in the community to families with children who have non-malignant lifethreatening illnesses. The purpose of this study was to conduct a pragmatic evaluation of the service. Methods: A before and after study design was used. It incorporated an administered questionnaire survey of carers of children at the time of referral and again after six months, a postal survey of health professionals and an audit of nursing and psychology records. Results: Twenty-nine families were recruited. The children had a wide range of needs. Prior to the service, nearly half were rated by their main carer as experiencing considerable distress. Perceived problems were as frequently due to emotional or practical care needs as due directly to their physical illness. Information and nursing care needs appeared to be improved and distress rating was slightly reduced after the involvement of the service. However, problems with equipment and respite needs were not improved. In general, families were satisfied with central aspects of the service. Conclusions: The service appears to meet most of the expectations of both families and health professionals. However, recommendations include improvement of communication, the provision of a 24-h service and of respite care.
ACCESSION #
7351670

 

Related Articles

  • Job syndrome masquerading as non-accidental injury. Walsh, J.; Reardon, W. // Archives of Disease in Childhood;Jan2008, Vol. 93 Issue 1, p65 

    Awareness of the rare condition of Job syndrome is low among both paediatricians and geneticists. Consequently, observation of the recurrent fractures in the majority of such cases can result in misdiagnosis of non-accidental injury in young children who have the syndrome. The case we report...

  • JOURNAL CLUB.  // Contemporary Pediatrics;Apr2000, Vol. 17 Issue 4, p183 

    Presents several information on pediatric care. Effectiveness of Cisapride drug in treating constipation; Information on the survey regarding the practice characteristics of homeopathic and naturopathic practitioners; Investigation on the effect of colic on children.

  • Assessing Culturally Diverse Pediatric Clients. Davidhizar, Ruth; Havens, Robyn; Bechtel, Gregory A. // Pediatric Nursing;Jul/Aug99, Vol. 25 Issue 4, p371 

    Presents information on a study which offered an assessment of diverse pediatric patients. Essential concepts in a model of cultural diversity; Information on Giger and Davidhizar's transcultural assessment model; Factor which is paramount to providing safe care to all children.

  • Health Screening.  // Clinical Pediatrics;Dec1976 Supplement, Vol. 15 Issue S1, p202 

    This article discusses medical screening of children. The chief purpose of screening is to detect disorders early, on the basis that the earlier most conditions are diagnosed and treatment started, the less strain on the child's health, the shorter the duration of handicap, and the more...

  • The Health of American Indian Children. Wallace, Helen M. // Clinical Pediatrics;Feb1973, Vol. 12 Issue 2, p83 

    Assesses the health care needs of the American Indian children. Health concern for the high birth rate in the population of native children; Factors that contribute to the difficulty of the utilization of medical care among the group; List of illnesses that predisposed to high mortality in children

  • Keeping Your Child Healthy: How the well-nourished child has a better chance of staying illness free. Renna, Mary Ellen // Pediatrics for Parents;2008, Vol. 24 Issue 10, p4 

    The article discusses important ways in ensuring children's health. It suggests that an effective way to help children stay illness free is to ensure that they are well nourished by providing them with a well-balanced healthy diet and getting the complete complement of vitamins and minerals as...

  • Challenges in translating vascular tissue engineering to the pediatric clinic.  // Vascular Cell;May2011, Vol. 3, p23 

    A review of the article "Challenges in translating vascular tissue engineering to the pediatric clinic," by Daniel R. Duncan and Christopher K. Breuer, published in a 2011 issue of this journal, is presented.

  • pediatric.  // Taber's Cyclopedic Medical Dictionary (2009);2009, Issue 21, p1726 

    A definition of the term "pediatric," which means concerning the treatment of children, is presented.

  • DOERNBECHER CHILDREN'S HOSPITAL.  // Oregon Business Magazine;Dec2001, Vol. 24 Issue 12, p37 

    Focuses on the primary care and specialized hospital services for children of the Doernbecher Children's Hospital in Portland, Oregon. Comprehensive hospital programs for pediatric care; Family-centered approach of the hospital to child care; Corporate partners of the hospital.

  • CCN services have doubled since 1995.  // Paediatric Nursing;Dec2002, Vol. 14 Issue 10, p4 

    Reports on the increase in the number of children and families which benefit from community children's nursing (CCN) services in Great Britain from 1994 to 2002. Indication of the extent of spread and uptake of CCN services; Drop in the level of inital contact with district nurses; Factors for...

Share

Read the Article

Courtesy of THE LIBRARY OF VIRGINIA

Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics