Families as Educators: Guidance for Implementation

Dokken, Deborah L.; Buell, Lisa Durand
January 2011
Pediatric Nursing;Jan2011, Vol. 37 Issue 1, p41
Academic Journal
As family-centered care has become the "gold standard" in pediatrics, roles for family members in the health care system have broadened, including involvement in clinician education. This article is excerpted from a new publication, Families as Educators: Guidance for Implementation, which describes the multi-year experience of a national project, the Initiative for Pediatric Palliative Care (IPPC), in fully integrating families as participants in educational retreats. The IPPC experience affirmed the critical role that family members can play in clinician education — and how their involvement can be an impetus for change. After five years of working with more than 300 family members during 21 retreats, IPPC has developed a model for involving families as educators. To help other institutions understand and adapt the model, IPPC's guidance document outlines key steps or components needed to effectively and ethically involve families as educators, as well as barriers, strategies, and other guidance for each of the steps. In this excerpted material, one of these steps is shared with readers.


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