TITLE

Lung cancer health care needs assessment: patients' and informal carers' responses to a national mail questionnaire survey

AUTHOR(S)
Krishnasamy, M.; Wilkie, E.; Haviland, J.
PUB. DATE
May 2001
SOURCE
Palliative Medicine;May2001, Vol. 15 Issue 3, p213
SOURCE TYPE
Academic Journal
DOC. TYPE
Article
ABSTRACT
The objective of this study was to describe patients' and informal carers' perceptions of care received and services offered following a diagnosis of primary lung cancer. We prepared a prospective, national, mail questionnaire survey of 466 patients with a diagnosis of primary lung cancer and a lay carer of their choice. The setting was 24 randomly chosen hospitals throughout the UK, from a range of urban (n = 11) and rural settings (n = 13). The majority (76%/159) of responders were recipients of care from cancer units. Two hundred and nine patients (45%) with primary lung cancer and 70 (15%) lay carers completed questionnaires. The main results that we found were that key areas of unmet need were most apparent during periods away from acute service sectors, with as few as 40% of patients reporting having received as much help as they needed from community services. The greatest onus of care for patients fell to lay carers, but only 29% of patients identified their lay carers as having needs in relation to their illness. Where patients received all their diagnostic tests in one hospital they were significantly more likely to wait less time between first seeing their general practitioner (GP) and being told their diagnosis (P = 0.0001) than patients who had to attend more than one hospital during their diagnostic work-up period. Fifty per cent of patients reported experiencing some degree of breathlessness even at rest, but only 15% reported having received any advice on living with it. Less than a quarter (23%) of hospital consultants identified anxiety as a key problem for patients with lung cancer, but 66% of patients identified it as such. Hospital staff largely overlook the needs of informal carers, who derive support from a small, mainly community oriented group of professionals, but accessing help is problematic and is dependent on local resources and a need to be proactive. Our conclusions are that developments in service provision for patients with lung cancer and their informal carers need to focus on six key areas: development of strategies to encourage patients to present earlier to their GP; ongoing evaluation of rapid diagnostic clinics; development and evaluation of a lung cancer care coordinator role; evaluation of innovations in delivery of nursing care in the community; development of local guidelines to facilitate equitable access to palliative care and social services; and evaluation of supportive strategies targeted at lay carers.
ACCESSION #
4650445

 

Related Articles

  • Lung cancer and rehabilitation-what are the barriers? Results of a questionnaire survey and the development of regional lung cancer rehabilitation standards and guidelines. Nwosu, Amara; Bayly, Joanne; Gaunt, Kathryn; Mayland, Catriona // Supportive Care in Cancer;Dec2012, Vol. 20 Issue 12, p3247 

    Background: Evidence supports the role of rehabilitation in the management of lung cancer symptoms. Previous research reports that rehabilitation needs are inadequately recognised and managed, which may adversely affect patients' quality-of-life and create burden for caregivers. Aims: This study...

  • Lung cancer trial has problems in recruitment. Mayor, Susan // BMJ: British Medical Journal (International Edition);07/22/2000, Vol. 321 Issue 7255, p195 

    Discusses the reluctance of patients to participate in a clinical study of chemotherapy for non-small cell lung cancer in Great Britain. Factors affecting the patients' decisions, including fear of side effects; Statistics regarding eligible patients and average recruitment rates for lung...

  • Recognizing the caregiver. Blackwell, Joyce // Second Opinion;Oct93, Vol. 19 Issue 2, p45 

    Presents in an interview format the feelings and opinions of Joyce Blackwell, a certified nursing assistant or caregiver. Blackwell's belief that caregivers though hardworking are undervalued and underpaid; Belief that their situation will not get better; Old people's preference to be at home...

  • No room for hierarchy. Mullen, Deborah Flemist // Second Opinion;Oct93, Vol. 19 Issue 2, p54 

    Agrees with the article `Women and the Work of Caring,' by Debbie Ward. Hope that society will improve the lot of caregivers by treating them fairly; Christian faith as alternative vision and source of hope; Communal values in caregiving work.

  • Thanks for compassion of caregiving angels. Kerbel, Barbara // San Diego Business Journal;11/11/96, Vol. 17 Issue 46, p39 

    Presents information on female caretakers. Citing of Vicki, a caretaker; Comments from Vicki; Gratitude offered to people like Vicki from the author.

  • Spillover between daughters' roles as caregiver and wife: Interference or enhancement? Stephens, Mary Ann Parris; Franks, Melissa M. // Journals of Gerontology Series B: Psychological Sciences & Socia;Jan95, Vol. 50 Issue 1, pP9 

    Examines how the roles of caregiver and wife affect one another, and how such `spillover' effects are related to caregiver's well-being. Assessment of spillover effect on 125 adult daughter caregivers; Caregiving responsibilities of wives; Effect on family life; Impact on parent-care role.

  • Carer informants for dementia sufferers: Carer awareness of cognitive impairment in an elderly... McLoughlin, Declan M.; Cooney, Colm // Age & Ageing;Sep96, Vol. 25 Issue 5, p367 

    Assesses caregiver awareness of a range of cognitive deficits in their elderly dependents suffering from dementia. Comparison of awareness of cognitive impairment by spouses living with demented patients and first-degree and second-degree relatives; Identification of severity of memory...

  • Care for caregivers.  // Nutrition Health Review: The Consumer's Medical Journal;1996, Issue 77, p11 

    Discusses the significant role of caregivers in helping individual patients to recover from their illness. Some hints for caregivers to take care of themselves.

  • Caring About Carers - Progressive Attitudes Still Leading the Way at Balens.  // Positive Health;Feb2014, Issue 212, p1 

    The article provides information on Balens Ltd., a family-run business specializing in insurance for health and well-being professionals and organizations. It mentions the company's growth in Great Britain and Ireland, the growth strategies being implemented by the company and the increase in...

Share

Read the Article

Courtesy of THE LIBRARY OF VIRGINIA

Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics