Fabry trial set to answer "political problem"

Silversides, Ann
September 2009
CMAJ: Canadian Medical Association Journal;9/15/2009, Vol. 181 Issue 6/7, p365
Academic Journal
The article reports on the financial issue of the Canadian Fabry Disease Initiative study in Canada. It notes that it is a 10-year clinical investigation that was launched with only a three-year funding agreement in place. However, its future is in doubt due to the decision of Health Canada that it will not renew its funding after September 30, 2009. The authority's decision leaves the provinces to negotiate with therapy manufacturers to determine if and how they can extend the study.


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