Uncertainty in prognosis a key barrier to end-of-life care for children

Stephenson, Michelle
April 2008
Hem/Onc Today;4/25/2008, Vol. 9 Issue 7, p29
The article focuses on research about barriers to end-of-life are for children. According to a study conducted at the University of California in San Francisco to determine the attitudes and concerns of nurses and physicians on the palliative care for children. Results showed that the most common barriers to good end-of-life care for children include uncertain prognosis, differences in treatment goals and communication barriers.


Related Articles

  • Palliative care in children in Wales: a study of provision and need. Hain, Richard DW // Palliative Medicine;Mar2005, Vol. 19 Issue 2, p137 

    Aim: To establish incidence and prevalence of children needing palliative care in Wales. Patients and methods: Children were identified in three ways: (1) from paediatricians using the Welsh Paediatric Surveillance Unit (WPSU); (2) referrals to the specialist palliative medicine service based in...

  • COMMUNICATING WITH PATIENTS AND FAMILIES ABOUT DIFFICULT END OF LIFE DECISIONS: A GUIDE FOR MEDICAL PROVIDERS. deMaine, Jim; Dennett, Joi Murotani // Hamline Law Review;2013, Vol. 36 Issue 2, preceding p299 

    The article offers information on the importance of the use of effective communication skills by physicians during discussions of end of life (EOL) with patients and families in the U.S. It discusses the methodology for a patient care conference in seriously ill patients including the beginnings...

  • Communication and awareness about dying in the 1990s. Field, D.; Copp, G. // Palliative Medicine;1999, Vol. 13 Issue 6, p459 

    Since the 1960s communication and awareness about dying in modern western societies have been topics for debate, with a considerable amount of literature on the need for open communication and the strategies which can be used by health professionals to improve their communication with patients...

  • Helen House--a hospice for children: analysis of the first year. Burne, S.R.; Dominica, Frances; Baum, J.D. // British Medical Journal (Clinical Research Edition);12/15/1984, Vol. 289 Issue 6459, p1665 

    Reports the performance of Helen House hospice in Oxford, England. Provision of services for terminal illness, progressive and incurable illness and serve handicap; Basis on the style of care; Plans on the needs of children.

  • VALUE process helps families cope with end-of-life choices in the intensive care unit.  // H&HN: Hospitals & Health Networks;Mar2007, Vol. 81 Issue 3, p68 

    The article discusses the result of a study on communication between clinicians in the intensive care unit (ICU) and family members of a dying patient. The researchers evaluated a set of communication guidelines for family conferences between ICU clinicians and family members. The guidelines...

  • Spinal osteomyelitis due to Aspergillus flavus in a child: a rare complication after haematopoietic stem cell transplantation. Beluffi, Giampiero; Bernardo, Maria Ester; Meloni, Giulia; Spinazzola, Angelo; Locatelli, Franco // Pediatric Radiology;Jun2008, Vol. 38 Issue 6, p709 

    We report the case of a child affected by acute myeloid leukaemia who was treated with allogeneic haematopoietic stem cell transplantation and developed cervicothoracic spinal osteomyelitis due to Aspergillus flavus. The diagnosis was difficult on a clinical basis, but made possible by...

  • Fast-recovery fast spin-echo T2-weighted MR imaging: a free-breathing alternative to fast spin-echo in the pediatric abdomen. I-Hua Huang; Emery, Kathleen H.; Laor, Tal; Valentine, Mona; Tiefermann, Jan // Pediatric Radiology;Jun2008, Vol. 38 Issue 6, p675 

    In the mid 1990s, the fast spin-echo (FSE) and turbo spin-echo (TSE) T2-weighted (T2-W) sequences became available and are now widely accepted alternatives to conventional spin-echo sequences since they result in reduced acquisition times while maintaining tissue contrast. Since that time, there...

  • Having the difficult conversations about the end of life. Barclay, Stephen; Maher, Jane // BMJ: British Medical Journal (Overseas & Retired Doctors Edition;9/25/2010, Vol. 341 Issue 7774, p653 

    The article emphasizes the need for clinicians to create repeated opportunities for patients to talk about their future and end of life care. It highlights the issues that make conversations about end of life care and death difficult for patients and clinicians, such as poor prognosis, patients'...

  • What do patients receiving palliative care for cancer and their families want to be told?A Canadian and Australian qualitative study. Kirk, Peter; Kirk, Ingrid; Kristjanson, Linda J. // BMJ: British Medical Journal (International Edition);6/5/2004, Vol. 328 Issue 7452, p1343 

    Objective To obtain feedback from patients receiving palliative care and their relatives from various ethnic backgrounds about their experiences of the disclosure process and their satisfaction with information sharing during the illness. Design A qualitative study with semistructured single...


Read the Article


Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics