TITLE

Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities

AUTHOR(S)
Harding, Richard; Stewart, Karen; Marconi, Katherine; O'Neill, Joseph F.; Higginson, Irene J.
PUB. DATE
January 2003
SOURCE
BMC Public Health;2003, Vol. 3 Issue 1, p33
SOURCE TYPE
Academic Journal
DOC. TYPE
Article
ABSTRACT
Background: In response to increased global public health funding initiatives to HIV/AIDS care in Africa, this study aimed to describe practice models, strategies and challenges to delivering end-of-life care in sub-Saharan Africa. Methods: A survey end-of-life care programs was conducted, addressing the domains of service aims and configuration, barriers to pain control, governmental endorsement and strategies, funding, monitoring and evaluation, and research. Both closed and qualitative responses were sought. Results: Despite great structural challenges, data from 48 programs in 14 countries with a mean annual funding of US $374,884 demonstrated integrated care delivery across diverse settings. Care was commonly integrated with all advanced disease care (67%) and disease stages (65% offering care from diagnosis). The majority (98%) provided home-based care for a mean of 301 patients. Ninety-four percent reported challenges in pain control (including availability, lack of trained providers, stigma and legal restrictions), and 77% addressed the effects of poverty on disease progression and management. Although 85% of programs reported Government endorsement, end-of-life and palliative care National strategies were largely absent. Conclusions: The interdependent tasks of expanding pain control, balancing quality and coverage of care, providing technical assistance in monitoring and evaluation, collaborating between donor agencies and governments, and educating policy makers and program directors of end-of-life care are all necessary if resources are to reach their goals.
ACCESSION #
29973762

 

Related Articles

  • Does palliative care improve outcomes for patients with HIV/AIDS? A systematic review of the evidence. Harding, R.; Karus, D.; Easterbrook, P.; Raveis, V. H.; Higginson, I. J.; Marconi, K. // Sexually Transmitted Infections;Feb2005, Vol. 81 Issue 1, p5 

    Background: The need for palliative care in HIV management is underlined by the high prevalence of pain and symptoms, the toxicity, side effects, and virological failure associated with antiretroviral therapy, emergence of co-morbidities, continued high incidence of malignancies, late...

  • Access and equity in HIV/AIDS palliative care: a review of the evidence and responses. Harding, Richard; Easterbrook, Philippa; Higginson, Irene J.; Karus, Dan; Raveis, Victoria H.; Marconi, Katherine // Palliative Medicine;May2005, Vol. 19 Issue 3, p251 

    The high prevalence of pain and other symptoms throughout the HIV disease trajectory, the need for management of side effects related to antiretroviral therapy, the continuing incidence of cancers and new emerging co-morbidities as a result of extended life expectancy under new therapeutic...

  • Canada's Compassionate Care Benefit: Is it an adequate public health response to addressing the issue of caregiver burden in end-of-life care? Williams, Allison M.; Eby, Jeanette A.; Crooks, Valorie A.; Stajduhar, Kelli; Giesbrecht, Melissa; Vuksan, Mirjana; Cohen, S. Robin; Brazil, Kevin; Allan, Diane // BMC Public Health;2011 Supplement 4, Vol. 11 Issue Suppl 4, p335 

    Background: An increasingly significant public health issue in Canada, and elsewhere throughout the developed world, pertains to the provision of adequate palliative/end-of-life (P/EOL) care. Informal caregivers who take on the responsibility of providing P/EOL care often experience negative...

  • Macmillan backs need for free social support at end of life.  // Cancer Nursing Practice;Mar2012, Vol. 11 Issue 2, p4 

    The article reports that Macmillan Cancer Support, in its upcoming white paper, has urged the Great Britain government to support free social care for patients at the end of life.

  • Palliative worries.  // Pulse;4/20/2006, Vol. 66 Issue 16, p15 

    The article highlights the National Health Service's progress report on palliative care services. There was an increase in the proportion of practices in primary care that uses end-of-life care tools; however, a wide variation in the use of these tools was observed. Paul Cann, director of policy...

  • Palliative Care for Patient with Human Immunodeficiency Virus/Acquired Immune Deficiency Syndrome. Selwyn, Peter A.; Arnold, Robert M.; Liao, Solomon // Journal of Palliative Medicine;Dec2005, Vol. 8 Issue 6, p1248 

    This article focuses on the many ways in which palliative and disease-specific therapy for HIV can and should co-exist in an integrated model in order to meet the complex needs of patients now living with AIDS. Dramatic decreases in HIV-related mortality in the developed world is a result of...

  • The Challenge of Human Immunodeficiency Virus: A Model for Palliative Care. Arnold, Robert M.; Liao, Solomon // Journal of Palliative Medicine;Dec2005, Vol. 8 Issue 6, p1246 

    This article examines challenges in providing palliative care for HIV and AIDS. Palliative care professionals experience difficulty keeping up with the wealth of new medications, their combinations and drug to drug interactions. These problems are complicated by the fact that scientific advances...

  • Health Care System Factors Affecting End-of-Life Care. Morrison, R. Sean // Journal of Palliative Medicine;Dec2005 Supplement 1, Vol. 8, ps-79 

    The field of palliative care in the United States developed in response to a public health crisis—namely, poor quality of life for patients with serious illness and their families—and most palliative care research to date has been appropriately focused on identifying patient and...

  • Dying at home: a real patient choice? Hill, Sarah // International Journal of Palliative Nursing;Mar2006, Vol. 12 Issue 3, p100 

    The article discusses palliative care in Great Britain with the publication of a White Paper, which commits more investment by the government in end-of-life care and support for hospice at home services. It references a study by Gomes and Higginson published in the 2006 issue of the "British...

Share

Read the Article

Courtesy of THE LIBRARY OF VIRGINIA

Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics