TITLE

Ethnicity coding in a regional cancer registry and in Hospital Episode Statistics

AUTHOR(S)
Jack, Ruth H.; Linklater, Karen M.; Hofman, David; Fitzpatrick, Justine; Møller, Henrik
PUB. DATE
January 2006
SOURCE
BMC Public Health;2006, Vol. 6, p281
SOURCE TYPE
Academic Journal
DOC. TYPE
Article
ABSTRACT
Background: The collection of ethnicity information as part of cancer datasets is important for planning services and ensuring equal access, and for epidemiological studies. However, ethnicity has generally not been well recorded in cancer registries in the UK. The aim of this study was to determine the completeness of ethnicity coding in the Thames Cancer Registry (TCR) database and within the Hospital Episode Statistics (HES) data as held by the London Health Observatory, and to investigate factors associated with ethnicity being recorded. Methods: Records for 111821 hospital admissions of London residents with a malignant cancer as a primary diagnosis between April 2002 and March 2003 and records for 25581 London residents diagnosed with cancer in 2002 were examined. Data on sex, age, cancer network of residence, deprivation, proportion of non-whites in the local authority population, and site of cancer were available. The proportion of patients in each group with a valid ethnicity code was calculated. In the TCR data proportions were also calculated adjusted for all other variables. Results: Ethnicity was recorded for 90661 (81.1%) of the hospital admissions in the HES data and 5796 (22.7%) patients on the TCR database. Patients resident in areas with a higher proportion of non-white residents and the most deprived populations were more likely to have an ethnic code on the TCR database, though this pattern was not seen in the HES data. Adjustment did not materially affect the association between deprivation and ethnicity being recorded in the TCR data. Conclusion: There was a large difference in completeness of ethnicity between the data sources. In order to improve the level of recording in TCR data there needs to be better recording of ethnicity in sources TCR data collection staff have access to, or use of information from other sources e.g. electronic data feeds from hospitals or pathology laboratories, or HES data itself supplied directly to TCR. Efforts to collect ethnicity data should be encouraged in all healthcare settings. Future research should explore where the difficulties collecting ethnicity information lie, whether with patients, healthcare professionals or the recording procedure, and how such problems can be overcome.
ACCESSION #
29362418

 

Related Articles

  • Learning and Support Preferences of Adult Patients With Cancer at a Comprehensive Cancer Center. Chelf, Jane Harper; Deshler, Amy M.B.; Thiemann, Kay M.B.; Dose, Ann Marie; Quella, Susan K.; Hillman, Shauna // Oncology Nursing Forum;Jun2002, Vol. 29 Issue 5, p863 

    Purpose/Objectives: To identify content items for an inclusive education curriculum for adult patients with cancer, as well as describe their learning and support preferences, determine the level of information provided to them, and assess the patients' interest in potential new services....

  • UK cancer services to catch up with rest of world.  // PRWeek (London);12/14/2007, p10 

    The article provides questions and answers related to cancer services in Great Britain, including the British Department of Health's Cancer Reform Strategy, the expansion of the Sunsmart skin cancer prevention campaign and the use of government money for surgery and radiotherapy of cancer...

  • Records of ethnicity needed for diabetes.  // GP: General Practitioner;11/2/2007, p4 

    The article discusses the National Diabetes Audit's (NDA) report for 2005-06 which states that ethnicity is of crucial significance to understanding diabetes prevalence and service planning in Great Britain. Doctor Niti Pall said that collecting ethnicity data is extremely useful for planning...

  • Rates of diabetes soar in the UK.  // Practice Nurse;1/16/2009, Vol. 37 Issue 1, p7 

    The article reveals that one person is diagnosed with diabetes every 3 minutes in Great Britain, according to new figures from Diabetes UK. More than 300,000 people from black and minority ethnic groups have diabetes. Almost 150,000 people were diagnosed with diabetes in 2008 compared with...

  • Good health for all. Toofany, Swaleh // Nursing Management - UK;Sep2006, Vol. 13 Issue 5, p14 

    This article examines whether the public health white paper Choosing Health can meet the needs of black and minority ethnic groups in Great Britain. In the past decade, the health of black and minority ethnic groups (BMEG) has been the subject of much debate. This has been to the extent that...

  • The utility of cancer-related cultural constructs to understand colorectal cancer screening among African Americans. Thompson, Vetta L. Sanders; Bugbee, Alan; Meriac, John P.; Harris, Jenine K. // Journal of Public Health Research;2012, Vol. 2 Issue 2, p59 

    Background. Data suggest that colorectal cancer could be cut by approximately 60% if all people aged 50 years or older received regular screening. Studies have identified socio-cultural attitudes that might inform cancer education and screening promotion campaigns. This article applies item...

  • What symptom and functional dimensions can be predictors for global ratings of overall quality of life in lung cancer patients? Ulrika Östlund; Agneta Wennman-Larsen; Petter Gustavsson // Supportive Care in Cancer;Oct2007, Vol. 15 Issue 10, p1199 

    Abstract Purpose  This study explores what dimensions of a health-related quality of life (HRQOL) questionnaire predict global ratings of overall quality of life (QOL) in lung cancer patients in assessments by patients and significant others, respectively. Material and...

  • Cancer incidence in Arkhangelskaja Oblast in northwestern Russia. The Arkhangelsk Cancer Registry. Vaktskjold, Arild; Lebedintseva, Jelena A.; Korotov, Dmitrij S.; Tkatsjov, Anatolij V.; Podjakova, Tatjana S.; Lund, Eiliv // BMC Cancer;2005, Vol. 5, p82 

    Background: Data concerning incidence and prevalence of cancer in the different regions of Russia have traditionally not been provided on a basis that facilitated comparison with data from countries in western parts of Europe. The oncological hospital in Arkhangelsk, in co-operation with...

  • The associations between living conditions, demography, and the ‘impact of cancer’ scale in tumor-free cancer survivors: a NOCWO study. Sævar Gudbergsson; Sophie FossÃ¥; Patricia Ganz; Brad Zebrack; Alv Dahl // Supportive Care in Cancer;Nov2007, Vol. 15 Issue 11, p1309 

    Abstract Goals of work  The “impact of cancer” scale (IOC) is a new questionnaire that explores attitudes in the physical, psychological, social, and spiritual/existential domains in cancer survivors. This study explores the associations between...

Share

Read the Article

Courtesy of VIRGINIA BEACH PUBLIC LIBRARY AND SYSTEM

Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics