Ethnicity coding in a regional cancer registry and in Hospital Episode Statistics

Jack, Ruth H.; Linklater, Karen M.; Hofman, David; Fitzpatrick, Justine; Møller, Henrik
January 2006
BMC Public Health;2006, Vol. 6 Issue 1, p281
Academic Journal
Background: The collection of ethnicity information as part of cancer datasets is important for planning services and ensuring equal access, and for epidemiological studies. However, ethnicity has generally not been well recorded in cancer registries in the UK. The aim of this study was to determine the completeness of ethnicity coding in the Thames Cancer Registry (TCR) database and within the Hospital Episode Statistics (HES) data as held by the London Health Observatory, and to investigate factors associated with ethnicity being recorded. Methods: Records for 111821 hospital admissions of London residents with a malignant cancer as a primary diagnosis between April 2002 and March 2003 and records for 25581 London residents diagnosed with cancer in 2002 were examined. Data on sex, age, cancer network of residence, deprivation, proportion of non-whites in the local authority population, and site of cancer were available. The proportion of patients in each group with a valid ethnicity code was calculated. In the TCR data proportions were also calculated adjusted for all other variables. Results: Ethnicity was recorded for 90661 (81.1%) of the hospital admissions in the HES data and 5796 (22.7%) patients on the TCR database. Patients resident in areas with a higher proportion of non-white residents and the most deprived populations were more likely to have an ethnic code on the TCR database, though this pattern was not seen in the HES data. Adjustment did not materially affect the association between deprivation and ethnicity being recorded in the TCR data. Conclusion: There was a large difference in completeness of ethnicity between the data sources. In order to improve the level of recording in TCR data there needs to be better recording of ethnicity in sources TCR data collection staff have access to, or use of information from other sources e.g. electronic data feeds from hospitals or pathology laboratories, or HES data itself supplied directly to TCR. Efforts to collect ethnicity data should be encouraged in all healthcare settings. Future research should explore where the difficulties collecting ethnicity information lie, whether with patients, healthcare professionals or the recording procedure, and how such problems can be overcome.


Related Articles

  • UK cancer services to catch up with rest of world.  // PRWeek (London);12/14/2007, p10 

    The article provides questions and answers related to cancer services in Great Britain, including the British Department of Health's Cancer Reform Strategy, the expansion of the Sunsmart skin cancer prevention campaign and the use of government money for surgery and radiotherapy of cancer...

  • Records of ethnicity needed for diabetes.  // GP: General Practitioner;11/2/2007, p4 

    The article discusses the National Diabetes Audit's (NDA) report for 2005-06 which states that ethnicity is of crucial significance to understanding diabetes prevalence and service planning in Great Britain. Doctor Niti Pall said that collecting ethnicity data is extremely useful for planning...

  • Rates of diabetes soar in the UK.  // Practice Nurse;1/16/2009, Vol. 37 Issue 1, p7 

    The article reveals that one person is diagnosed with diabetes every 3 minutes in Great Britain, according to new figures from Diabetes UK. More than 300,000 people from black and minority ethnic groups have diabetes. Almost 150,000 people were diagnosed with diabetes in 2008 compared with...

  • Good health for all. Toofany, Swaleh // Nursing Management - UK;Sep2006, Vol. 13 Issue 5, p14 

    This article examines whether the public health white paper Choosing Health can meet the needs of black and minority ethnic groups in Great Britain. In the past decade, the health of black and minority ethnic groups (BMEG) has been the subject of much debate. This has been to the extent that...

  • Breast cancer cases detected by screening have doubled. Mayor, Susan // BMJ: British Medical Journal (Overseas & Retired Doctors Edition;2/7/2009, p315 

    The article discusses a British National Health Service (NHS) Information Centre report about its routine breast screening program. It revealed a 45% increase in the number of cases of breast cancer. The number of cases in 2007-2008 doubled compared to 1997-1998. Over half the cancers were not...

  • In a spin over screening. Peverley, Phil // Pulse;6/14/2007, Vol. 67 Issue 23, p28 

    The author discusses his views regarding the medical screening programs introduced by the British government. According to him, the proposed programs for bowel and prostate cancer screening do not guarantee that significant illness will be prevented. He thinks that the breast and cervical...

  • The burden of gastrointestinal disease: implications for the provision of care in the UK. M. D. Hellier; Williams, J. G. // Gut;Feb2007, Vol. 56 Issue 2, p165 

    The article discusses the implications of gastrointestinal disease in the provision of care in Great Britain. The author reflects that gastrointestinal and liver diseases are common but have been given little attention from a policy perspective. He mentions that the National Health Service...

  • BRIEFING.  // Occupational Health;Jul2004, Vol. 56 Issue 7, p7 

    Presents news briefs on public health in Great Britain as of July 2004. Resignation of England's chief nursing officer Sarah Mullally; Findings of a study on lung cancer patients conducted by the British Medical Journal; Cause of discontinued drug treatment on patients diagnosed with chronic...

  • Does using a hospital bed have an impact on the meaning of home? Bowden, Gerard; Bliss, Julie // British Journal of Community Nursing;Dec2008, Vol. 13 Issue 12, p556 

    During the end of life care of patients with cancer, hospital beds are often introduced into the home setting. The impact of this intervention is not known. Clinical experience of the phenomena indicates that two components may be relevant in this scenario - the preference for home care and the...


Read the Article


Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics