Angioedema and the Canadian Network of Rare Blood Disorder Organizations: extending the Canadian hemophilia care model

Bowen, Tom
October 2006
CMAJ: Canadian Medical Association Journal;10/24/2006, Vol. 175 Issue 9, p1083
Academic Journal
The article offers facts about the Canadian Network of Rare Blood Disorder Organizations. The network will work to stress the importance of key issues including patient registries, the advantages of specialized care centres for complex, rare disorders and postmarketing surveillance of therapies used to treat the disorders. It was noted that Health Canada has showed support for the development of Canadian rare blood-disorder data registries.


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