Internet Parent Support Groups for Primary Caregivers of a Child with Special Health Care Needs

Baum, Lynda S.
September 2004
Pediatric Nursing;Sep/Oct2004, Vol. 30 Issue 5, p381
Academic Journal
Little is known about the efficacy of Internet Parent Support Groups (IPSGs). This exploratory study describes factors related to use of Internet Parent Support Groups (IPSGs) by primary caregivers of Children with Special Health Care Needs (CSI-ICN). An Internet survey was administered to 114 participants using stress and coping theory as a guide for measuring perceived satisfaction, stressors, social support, personal characteristics, appraisal, positive and negative emotion, coping, timing, somatic health, physical functioning, family relationships, and well-being. The majority of participants not only obtained what they sought, but found more than expected in terms of insight and people to trust. The strongest outcome factor related to satisfaction was improved caregiver-CSI-ICN relationship, and nearly 90% of the sample suggested participating in an IPSG as soon as possible. Nurses may want to consider IPSGs as an adjunct for social support in this population.


Related Articles

  • Carers need you to care about them. Som, Rita // Independent Nurse;3/16/2015, p3 

    No abstract available.

  • Assessment of Rigour in Published Nursing Intervention Studies that Use Observational Methods. Coker, Esther; Ploeg, Jenny; Kaasalainen, Sharon; Fisher, Anita // Qualitative Report; 

    Unstructured observation involving "going into the field" to describe and analyze what is seen and heard, may be an underutilized method in nursing research. The role of the observer, the nature of the observations, data sources, systematic recording and analysis of observations, appropriate...

  • The need to become family caregivers: Grounded Theory. De Paiva, Raquel Silva; Valadares, Glaucia Valente; Pontes, Juliana Silva // Online Brazilian Journal of Nursing;2012, Vol. 11 Issue 3, p607 

    Aim: To discuss the relationship between the family and hospital discharge regarding manifestations, attitudes, feelings and practices. Method: The Theory Based on Data Approach, with semi-structured interviews and unsystematic participant observation was used as an approach. The research was...

  • Teaching to take care: The nurse and caregiver familiar in home care elderly. de Azevedo, Neusa Maria // Online Brazilian Journal of Nursing;2010, Vol. 9 Issue 2, p1 

    No abstract available.

  • Sharing the care helps us all. Williams, Gayle // Consumer Reports on Health;Nov2012, Vol. 24 Issue 11, p2 

    The article presents an introduction to a report within the issue which discusses the role of home caregivers and their support needs.

  • Project seeks 300 primary care staff to support carers.  // Primary Health Care;May2014, Vol. 24 Issue 4, p7 

    The article offers information on the launch of 12-month project for the recruitment of a network of community nurses from all specialties which include district nurses, practice nurses and school nurses from Queen's Nursing Institute (QNI).

  • Support for family carers. Payne, Sheila; Morbey, Hazel // Nursing Standard;2/26/2014, Vol. 28 Issue 26, p57 

    Nurses' help is pivotal, say Sheila Payne and Hazel Morbey.

  • Rede e apoio social das famílias de crianças em condição crônica. Medeiros da Nóbrega, Vanessa; Collet, Neusa; Lima da Silva, Kenya; Duarte Coutinho, Simone Elizabeth // Revista Eletronica de Enfermagem;2010, Vol. 12 Issue 3, p431 

    Chronic illness in childhood modifies the family dynamics. This research aimed to identify the social network and the kinds of social support, assessing the links supporters, from the families of children with chronic conditions. It was developed a descriptive-exploratory study, with a...

  • Caregiver Decision-Making: Household Response to Child Illness in Sub-Saharan Africa. Pierce, Hayley; Gibby, Ashley; Forste, Renata // Population Research & Policy Review;Oct2016, Vol. 35 Issue 5, p581 

    We draw upon a framework outlining household recognition and response to child illness proposed by Colvin et al. (Soc Sci Med 86:66-78, 2013) to examine factors predictive of treatment sought for a recent child illness. In particular, we model whether no treatment, middle layer treatment...


Read the Article


Sorry, but this item is not currently available from your library.

Try another library?
Sign out of this library

Other Topics