Welfare, M. R.; Collingan, J.; Corbett, S.; Goulbourne, L. E.
April 2004
Gut;Apr2004 Supplement 3, Vol. 53, pA63
Academic Journal
The article focuses on the issue of involving patients in the research agenda. It identifies the research priorities of GORD patients. It is argued that patients are the experts and have the knowledge and experience of living with disease and should be consulted about what research is being conducted. An appropriate and effective methodological tool needs to be identified to elicit patients' views and opinions about the research agenda. The results can be used to influence and support the future research agenda. Further research could also be conducted to identify whether there is a possible mismatch between those who control the research agenda and those subjects preferred by patients.


Related Articles

  • Supporting positive experiences and sustained participation in clinical trials: looking beyond information provision. Gillies, Kate; Entwistle, Vikki A. // Journal of Medical Ethics;Dec2012, Vol. 38 Issue 12, p751 

    Recruitment processes for clinical trials are governed by guidelines and regulatory systems intended to ensure participation is informed and voluntary. Although the guidelines and systems provide some protection to potential participants, current recruitment processes often result in limited...

  • CTTI recommends informed consent process reform. Korieth, Karyn // CenterWatch Weekly;11/30/2015, Vol. 19 Issue 47, p1 

    The article reports that the private-public partnership Clinical Trials Transformation Initiative (CTTI) has recommended a new model for the informed consent process reform to improve the ability of patients deciding to participate in clinical research.

  • Sites struggle with need to increase Hispanic patient recruitment and difficulty funding those efforts. Ronald Rosenberg // CenterWatch Weekly;6/2/2014, Vol. 18 Issue 22, p1 

    The article focuses on the participation of Hispanic patient in clinical trials and their struggles in funding their efforts on finding investigative clinical trial sites. Topics discussed include several studies which revealed implications and factors affecting the issue including low...

  • The next step in the patient revolution: patients initiating and leading research. Vayena, Effy // BMJ: British Medical Journal;7/5/2014, Vol. 348 Issue 7965, pg4318 

    A letter to the editor is presented in response to an editorial by T. Richards and F. Godless regarding patient participation in conducting health research.

  • Working to Improve Palliative Care Trials. Kapo, Jennifer; Casarett, David // Journal of Palliative Medicine;Jun2004, Vol. 7 Issue 3, p395 

    Offers ideas on ways to improve palliative care trials. Challenges associated with palliative research; Methods of recruiting and screening patients for palliative research; Factors that need to be considered in palliative research.

  • Make your own health miracle. MacMillan, Amanda // Prevention;Dec2006, Vol. 58 Issue 12, p139 

    The article presents information about participating in experimental trials across the U.S. including the National Institutes of Health Clinical Center in Bethesda, Maryland. Prevention trials look for better ways to keep people healthy, diagnostic and screening clinical trials look for methods...

  • Application of Multilevel Growth-Curve Analysis in Cancer Treatment Toxicities: The Exemplar of Oral Mucositis and Pain. Dudley, William N.; McGuire, Deborah B.; Peterson, Douglas E.; Wong, Bob // Oncology Nursing Forum;Jan2009, Vol. 36 Issue 1, pE11 

    Purpose/Objectives: To introduce the use of a statistical technique known as multilevel growth-curve analysis and illustrate how the method can be advantageous in comparison with traditional repeated measures for the study of trajectories of signs and symptoms in individual patients over...

  • Exaggeration of treatment benefits using the "event-based" number needed to treat. Aaron, Shawn D.; Fergusson, Dean A. // CMAJ: Canadian Medical Association Journal;9/23/2008, Vol. 179 Issue 7, p669 

    The article discusses the population needed to asses the effects of medications within a specified time frame in a clinical trial. However, on 2005, a new approach was proposed, which became the basis of examination of respiratory diseases, wherein the population depends on the events that may...

  • Culturally Sensitive Approaches to Recruitment and Retention of Hispanics in the National Lung Screening Trial. Tenorio, Sally; O'Donnell, Colin; Hernandez, Jhenny; Rozjabek, Heather; Lynch, David; Marcus, Pamela // Journal of Immigrant & Minority Health;Aug2014, Vol. 16 Issue 4, p761 

    Hispanics are underrepresented in medical research. At the National Lung Screening Trial's University of Colorado Denver screening center, traditional recruitment methods resulted in enrollment of few Hispanics. In response, the center adopted culturally sensitive recruitment techniques,...


Read the Article


Sign out of this library

Other Topics