TITLE

Familial diagnostic experiences in paediatric oncology

AUTHOR(S)
Evans, N T; Wakefield, C E; McLoone, J K; Cohn, R J
PUB. DATE
January 2015
SOURCE
British Journal of Cancer;1/6/2015, Vol. 112 Issue 1, p20
SOURCE TYPE
Academic Journal
DOC. TYPE
Article
ABSTRACT
Background:Diagnostic delays may not have significant prognostic implications in paediatric oncology, but psychological impacts remain understudied.Methods:Interviews exploring diagnostic experiences were conducted with childhood cancer survivors (n=19), parents (n=78) and siblings (n=15).Results:Median diagnostic time was 3 weeks. Participants described a mixture of rapid diagnoses (28.9%), plus delayed appraisal intervals (that is, parent- or patient-associated diagnostic delays; 40.0%) and diagnostic intervals (that is, healthcare-associated delays; 46.7%). Families experiencing delays described guilt and anger and deleterious impacts on the family-clinician relationship. Some believed delays impacted on treatment and prognosis.Conclusions:The effect of the diagnostic experience can be considerable.
ACCESSION #
100272850

 

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